This 11 Year Old Girl Could Change The World And We Can Help Her
She's trying to make a difference in the lives of thousands of kids with cancer.
Three years ago, Kylie Simonds, then 8 years old, was diagnosed with rhabdomyosarcoma, a rare form of childhood cancer affecting connective tissue.
She underwent 46 weeks of chemotherapy.www.gofundme.com
She lost weight. Her hair fell out. She was frequently sick and weak from the powerful drugs. And, of course, being attached to a chemo machine was no fun: during those 46 weeks, she was attached to tubes, IV bags, and a monitor attached to a steel IV pole.
She told WTNH, "I used to have to use the I-V poles and I always tripped over all the wires" and "It was hard to walk around, and I always had to have someone push it for me because I was kind a weak when I was in chemo."courageforkylie.com
Overnight stays in the hospital meant being stuck to it. Taking it home with her meant limiting her ability to try to live any kind of a life that a kid would want to live.
Her experience got her thinking of a better way to deliver chemotherapy to kids with cancer. She hit upon a novel idea: that of an IV backpack.
Kylie's invention: an I.V. backpack.www.gofundme.com
An IV backpack would allow greater mobility and remove some of the anxiety associated with the cold, medical look of IV bags, tubes, and steel towers.
It could make something scary a little less scary for these kids.
Kylie's invention received four awards at the UCONN invention convention, including one allowing her to submit her idea for patent with all costs covered.www.gofundme.com
Kylie's funding website describes the backpack:
"The design incorporated an I.V. pole with a drip bag protection cage. Kids want to move around and we can't risk the Medicine bags getting punctured or compressed. This cage is customizable with different shapes, like hearts, peace signs, etc. This also makes treatment less scary like current I.V. poles which are very intimidating to young children. The protection cage is also removable and can be replaced with a child's choice of design. If they receive two different medicines or a transfusion and medicine they can add a second cage."
"The backpack also has the I.V. controller built into the bag to control the flow rate. It is powered by battery which most I.V. machines on a pole are also battery operated."
The device is elegant and simple.www.gofundme.com
Kylie has been cancer-free for two years and now she wants to take her experience and use it for something positive: to make a difference in the lives of the 50,000 kids undergoing IV chemotherapy right now.
She needs to create a working prototype of her backpack. To do that, she's set up a funding site that so far has raised over $29,000 of her $50,000 goal.
This invention could change the lives of thousands of kids with cancer.www.gofundme.com
We need to do anything and everything we can to encourage and support the vision of young people like Kylie.
We'd really like to see Kylie achieve her goal...and then some. On her website, she writes, "All donations in excess of my goal will go towards the manufacturing of the FIRST usable IV backpacks. EVERY PENNY!"
Even if you can't donate something right now, there are plenty of ways to support Kylie Simonds. One way is to share this article. One click. Takes no effort. The crowdfunded internet raised $50,000 for a guy to make potato salad...I think we can probably at least get this young inventor the attention that her courage and vision deserve, don't you?
Please visit Kylie Simonds at Go Fund Me.courageforkylie.com
While we"re at it, let"s get her some likes on her Facebook page and some followers on her Twitter account.
Please share this young lady's amazing courage and vision with your friends.
Source(s): Kylie Simonds at Go Fund Me. Other pictures used with permission from Kylie Simonds from Courage For Kylie. Video source: Kylie Simonds. on her YouTube channels. Quotes from article by WTNH